My ALS Challenge

The last two weeks have been both exciting and emotional. Often, when someone says ‘Let me know how I can help’, it is well intentioned but the delivery can sometimes fall short. Well, I have to say, over the last few week, this has not been the case. Nor has it been since I’ve shared my diagnosis.

A couple of weeks ago my wife, Kim, needed to be away for work on one of the days I go to the Abilities Centre for the TIME Program. I do find it hard to ask for help. My cousin Peter had offered to give me a ride if needed, having read the challenges in trying to get a specialized transit pass, so I gave him a call. He made the time to make sure I had a ride both to and from the program. I would’ve understood if he couldn’t make it but, when asked, there was no hesitation. Support offered and support given.

I haven’t been able to maintain my yard as I have in the past. A few days before the last leaf pickup of the season, I was looking around our yard and thinking the remaining leaves will just need to remain until spring. The evening before the last pickup, I get a text from my neighbour, Rene, letting me know he and his son, Owen, raked up the leaves and placed the bags on the curb. Just in case I was wondering why there were bags in front of our house. It was such a kind gesture from one of my great neighbours. I didn’t even need to ask!

Finally, I have to give a shout-out to my work colleagues. I work for the provincial government as an IT project manager. In mid-November, I had written an article that was posted in the public service newsletter about both my diagnosis, my Lemonade recipe and fundraising efforts. The support was phenomenal. The branch I work in, called IT Source, provides resources to other branches and ministries. The other day, the head of our branch sent out an email, supporting my Virtual Mobility Challenge to everyone within IT Source . It was organized by my manager, Nav. The email included pictures of her and other managers, riding their bikes or on a treadmill, who are participating with me by doing their own mobility challenge. 

Okay, I was not expecting this. When I opened it, I cried. Every tear, though, was a tear of joy.

Today, I was given the opportunity with the branch I work with, to speak at their town hall meeting. I was nervous. It is much easier to write than to speak about something personal. The support was overwhelming. Again, more tears.

All I can say is the support I have received from my family, friends and colleagues has been so unexpected and so welcomed. From my wife who, daily provides unconditional support. My sister, Deb, who regularly calls and checks in. My friends, neighbours and colleagues who are there every single day.

These are the things that matter. This is why I love my job, the people I work with, our neighbourhood, my friends that I’ve known since as far back as high school and my wholly supportive family.

I need another box of tissues…