Category: Uncategorized
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Help Complete my Cross-Canada Journey for ALS Awareness
I started my virtual ride across Canada in December 2023 to support ALS Canada and raise awareness about ALS. Earlier this year, in April, I had to pause my virtual ride across Canada due to my physical decline. At the time, I had completed 3,740 km or 50%. In June,…
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A Reminder to keep making Lemonade
It has been a while since my last post. I was finding that since I reached my second anniversary of diagnosis last December that finding topics which are not overly negative or sounding angry were more difficult to think of. The last thing I wanted to do is sound like…
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Navigating Life with ALS: Mobility and Isolation
The last several months have been challenging. December 7, 2024 marked my two year anniversary confirming my ALS diagnosis. I knew it was coming, but when it actually came, the reality of it hit home. I was now entering that dreaded 2-5 year window that 80% of ALS patients do…
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Hit Me with your Best Shot
On December 7, 2022, I was diagnosed with ALS and decided to embrace the challenge instead of hiding from it. I began a virtual bike ride across Canada to raise awareness and funds for ALS research. Despite facing significant physical and mental obstacles, I remain determined to continue my journey…
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I Like to Think of it as Being Wheelchair-Enabled!
Living with ALS presents daily challenges, particularly in mobility. Transitioning to a lightweight power wheelchair gave me improved independence and mobility during a trip to Boston. I like to consider myself being “wheelchair-enabled” instead of “wheelchair-bound”.
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The Continuing Challenges of ALS
Lately, I’ve had a few people asked me how I was doing. I have been asked if I was feeling better and if things were improving. I admit that I am still a bit surprised to be asked these questions. I think what it does indicate is how little is…
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My Awareness Increased during ALS Awareness Month. What about you?
June was ALS awareness month. During this month I did a number of activities both participating and contributing to raise awareness for ALS. June 2 was Lou Gehrig Day. ALS Canada invited me and my family to attend the Blue Jays game at the Rogers Centre in the Blue Jays…
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Looking for Something to Watch? Have I Got a Movie for You!
On May 28/24, a documentary launched on Amazon Prime about Brian Wallach and I AM ALS, a US-based non-profit. I encourage you to watch this movie. Please read my post about why it was hard for me to watch, but I am glad I did.
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What Could be Better than Driving your Favourite Sports Car?
Almost 6 months into my virtual ride across Canada to raise funds for ALS Canada I have completed just under 2,400km. Though a bit slower than first planned, it really is more about the journey, isn’t it?
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From People with ALS to its Researchers: A Community Working Together to Overcome ALS
Although simple daily activities are becoming more difficult, after attending ALS Canada’s recent ALS Research Forum and experiencing the sense of community coming together at all levels, I am inspired to keep pushing forward, and heartened by such a wonderful community.
My ALS Challenge 