Category: Uncategorized
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My First Wheelchair: Changing Perspectives on Mobility
The idea of a wheelchair used to scare me. I used to think having to get a wheelchair would mean my mobility would be reduced as I could no longer walk. What would be next? Now, I am very excited! The other day I was measured for my first wheelchair,…
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What does Accessibility mean to Someone with a Disability?
Accessibility Helps Remove Barriers while Retaining Independence First off, I am thankful I am still able to continue working, and I will continue to do so as long as ALS allows me. Okay, with that said, during the day I work as an IT project manager. At the beginning of…
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Maintaining Mobility
When I was diagnosed with ALS, I was told to keep exercising to maintain my mobility, albeit in moderation. So, my wife and I started looking for fitness programs that catered to ALS patients. I was seeing a trainer that was only a 10-minute drive from home. But, due to…
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Some Days are Tougher than Others
I have been asked seemingly simple questions but are really difficult to answer. For example, “What is it like living with ALS?” or “How I can help?”. Why are these so difficult to answer? Because I am still trying to figure out the answers to them myself. I must start…
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My ALS Journey Begins
What do you do when given a truckload of lemons? Why, you make the best possible lemonade you can, of course! Let me put this statement in context. I was diagnosed with ALS in December, 2022. The following is the story of how I got to my diagnosis and what…
My ALS Challenge 