Latest posts
-
My Awareness Increased during ALS Awareness Month. What about you?
June was ALS awareness month. During this month I did a number of activities both participating and contributing to raise awareness for ALS. June 2 was Lou Gehrig Day. ALS Canada invited me and my family to attend the Blue Jays game at the Rogers Centre in the Blue Jays Community Cares box where we Read more
-
Looking for Something to Watch? Have I Got a Movie for You!
On May 28/24, a documentary launched on Amazon Prime about Brian Wallach and I AM ALS, a US-based non-profit. I encourage you to watch this movie. Please read my post about why it was hard for me to watch, but I am glad I did. Read more
-
What Could be Better than Driving your Favourite Sports Car?
Almost 6 months into my virtual ride across Canada to raise funds for ALS Canada I have completed just under 2,400km. Though a bit slower than first planned, it really is more about the journey, isn’t it? Read more
-
From People with ALS to its Researchers: A Community Working Together to Overcome ALS
Although simple daily activities are becoming more difficult, after attending ALS Canada’s recent ALS Research Forum and experiencing the sense of community coming together at all levels, I am inspired to keep pushing forward, and heartened by such a wonderful community. Read more
-
I Will Survive
On hearing Catherine, Princess of Wales’ cancer diagnosis, I thought of my father’s successful battle with cancer in the 1950s and the progress in cancer research. It also highlighted the absence of ALS survivors and the need for continued research. I continue to raise funds so one day I may be able to say ‘I… Read more
-
Take Me Out to the Ballgame
The ALS community received disappointing news that one of the three approved drugs in Canada did not meet its Phase 3 primary and secondary endpoints. A setback, no doubt, but there is still a lot of research, with some exciting new studies underway. Continued funding and support for ALS will hopefully find a cure. Read more
Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe.
ALS is not contagious. There is no cure for ALS and few treatment options for the majority of people living with the disease. Approximately 80 per cent of people with ALS die within two to five years of being diagnosed.
My ALS Challenge 