Latest posts
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‘To be or not to be’, is that really the question?
I have completed almost 1400km in my virtual ride across Canada for my ALS fundraiser. Through falls and illness, I ask is ‘To be or not to be’ really the question? For me, it is always ‘to be’. The only question is ‘how will I choose to use my time going forward’? Read more
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Channeling my Inner MacGyver with Every New Challenge
As my journey with ALS progresses, I am constantly reminded of the degenerative nature of this disease with no cure. Until more research can be done to help find a cure, or at least extend quality of life, I will continue to channel my inner MacGyver to make lemonade. Read more
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What is a ‘Chumbawamba’, anyway?
ALS is a disease that progressively paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, Read more
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More Thoughts on Accessibility and Mobility
Happy New Year everyone! I hope you were able to spend some quality time with family and friends. I was able to connect with some old friends and plenty of family. I knew it would be tiring – every outing is tiring – but it was worth the recovery the next day to have these experiences and Read more
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A Get By with A Lot of Support from my Family, Friends & Colleagues
The last two weeks have been both exciting and emotional. Often, when someone says ‘Let me know how I can help’, it is well intentioned but the delivery can sometimes fall short. Well, I have to say, over the last few week, this has not been the case. Nor has it been since I’ve shared my diagnosis. A Read more
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Lemons are Needed to make Lemonade
I started this blog to share my ALS journey and raise awareness of what it is like living with this disease. My goal is to share both the positive and negative sides. Regardless of what I share, one thing is true: everything had to be re-prioritized and re-thought the day I received my diagnosis – Read more
Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe.
ALS is not contagious. There is no cure for ALS and few treatment options for the majority of people living with the disease. Approximately 80 per cent of people with ALS die within two to five years of being diagnosed.
My ALS Challenge 